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Journal of Health Psychology
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The Fight for ‘Health-related Normality’: A Qualitative Study of the Experiences of Individuals Living with Established Inflammatory Bowel Disease (IBD)

Nicola J. Hall

University of Sunderland, UK, nicola.hall{at}sunderland.ac.uk

Gregory P. Rubin

University of Sunderland, UK

Audrey Dougall

Durham University, UK

A. P. S. Hungin

Durham University, UK

Joanne Neely

Durham University, UK

This article reports on the experiences of individuals living with IBD and identifies a range of coping strategies used by them. Qualitative data from 15 individual interviews and three focus groups were analysed using a grounded theory approach. The main focus is on the emergent core concept of ‘health-related normality’. A theoretical framework is proposed to explain how individuals with IBD assess their health-related normality, their fight to maintain it and their need to retain the appearance of normality to others. It is concluded that individuals maintain their health-related normality along certain time and context sensitive continuums rather than fitting into a distinct typology.

Key Words: chronic illness • coping • grounded theory • Inflammatory Bowel Disease • normality

Journal of Health Psychology, Vol. 10, No. 3, 443-455 (2005)
DOI: 10.1177/1359105305051433
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