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Journal of Health Psychology
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Stigmatization, Physical Illness and Mental Health in Primary Ciliary Dyskinesia

I. C. McManus

University College London, UK, i.mcmanus{at}ucl.ac.uk

G. F. Stubbings

University College London, UK

N. Martin

University College London, UK

Primary ciliary dyskinesia (PCD) causes chronic cough, sinusitis and bronchiectasis, and half of patients also show situs inversus. The genetic basis and visible and concealed chronic symptoms provide potential for stigmatization. We describe a structural equation model linking a questionnaire measure of stigmatization to sex, age, personality (Big Five), symptoms (St George’s Respiratory Questionnaire), health status (SF-36) and stress (GHQ-12). Stigma did not relate to physical symptoms or health, or to situs, but correlated with mental health and the social impact of symptoms. Neuroticism, extroversion, openness to experience, age, age at diagnosis and being female indirectly affected stigmatization via mental health.

Key Words: bronchiectasis • chronic respiratory illness • primary ciliary dyskinesia • stigma • structural equation modelling

Journal of Health Psychology, Vol. 11, No. 3, 467-482 (2006)
DOI: 10.1177/1359105306063320
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