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Journal of Health Psychology
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*Bladder Diseases
*Pelvic Pain
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Life Impact of Urologic Pain Syndromes

Lena Hatchett

Loyola University Medical Center, IL, USA, lhatchett{at}lumc.edu

Mary Pat Fitzgerald

Loyola University Medical Center, IL, USA

Jeannette Potts

Cleveland Clinic Foundation, OH, USA

Abigail Winder

Loyola University Medical Center, IL, USA

Keith Mickelberg

University of Pennsylvania, PA, USA

Ted Barrell

University of Pennsylvania, PA, USA

John W. Kusek

National Institutes of Health, MD, USA

In order to explore the personal experience of chronic urologic pain we asked patients to journal in their own words their daily symptoms and the effects of those symptoms on home/family life, working life and social life. Journal responses were independently reviewed by three researchers and major themes summarized following an inductive approach. Three major themes were identified concerning symptoms, personal and interpersonal effects of symptoms and related role limitations. Fatigue emerged as a newly recognized symptom that may benefit from treatment. Role limitations are mediated by potentially modifiable personal and interpersonal effects currently not addressed in urologic pain treatment paradigms.

Key Words: chronic pelvic pain • chronic prostatitis • interstitial cystitis • painful bladder syndrome • quality of life

Journal of Health Psychology, Vol. 14, No. 6, 741-750 (2009)
DOI: 10.1177/1359105309338973
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