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The Diabetes Educator

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Journal of Health Psychology
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Living with Ankylosing Spondylitis

The Patient’s Perspective

Kate E. Hamilton-West

University of Kent, UK, K.E.Hamilton-West{at}kent.ac.uk

Lyn Quine

University of Kent, UK

Ankylosing Spondylitis (AS) is a potentially debilitating chronic condition that necessitates a biopsychosocial approach for successful long-term management. However, the psychosocial consequences of AS are not well understood. In this study patients (N = 68) reported impacts of AS across a wide range of life domains; negative impacts included physical effects of AS, changes in mood or personality, effects on social life and relationships with friends and family, low self-esteem, stigma and worry about the future; positive impacts included increased exercise, feelings of achievement and empathy, stronger relationships, slower pace of life and a more positive perspective. Implications for treatment are discussed.

Key Words: Ankylosing Spondylitis • benefit-finding • quality of life

Journal of Health Psychology, Vol. 14, No. 6, 820-830 (2009)
DOI: 10.1177/1359105309341394
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