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Perceived HIV-related Stigma and HIV Disclosure to Relationship Partners after Finding Out about the Seropositive Diagnosis

Old Dominion University, USA, vderlega{at}odu.edu

Barbara A. Winstead

Old Dominion University, USA

Kathryn Greene

Rutgers University, USA

Julianne Serovich

Ohio State University, USA

William N. Elwood

Center for Public Health and Evaluation Research, Inc., USA

The present study examined how perceived HIV-related stigma (how much HIV-infected persons believe that the public stigmatizes someone with HIV) influences both reasons for and against HIV disclosure and self-reports of HIV disclosure to a friend, intimate partner and a parent. The research participants were 145 men and women living with HIV. They were asked to recall when they first learned about their HIV diagnosis. Then they indicated how much specific reasons might have influenced disclosing or not disclosing about the HIV diagnosis to a friend, intimate partner and a parent. Findings, based on the total sample, indicated that perceived HIV-related stigma was associated with the endorsement of various reasons against disclosing to a friend and a parent, including concerns about self-blame, fear of rejection, communication difficulties and a desire to protect the other person. Perceived HIV-related stigma was not associated with the endorsement of any reasons for disclosing to a friend, intimate partner or a parent, including catharsis, test other’s reactions, duty to inform/educate, similarity and a close/supportive relationship with the other. In addition, perceived HIV-related stigma predicted self-reports of disclosure to a parent but not to a friend or intimate partner. Specific reasons for and against self-disclosure predicted HIV disclosure based on the type of relationship with the potential disclosure recipient. The data analyses were also stratified by gender; these results were, with some exceptions, consistent with the findings with the total sample. The research introduces scales that quantify individuals’ reasons for HIV disclosure and/or nondisclosure.

Key Words: HIV disclosure • perceived HIV-related stigma • reasons for and against HIV disclosure • significant others

Journal of Health Psychology, Vol. 7, No. 4, 415-432 (2002)
DOI: 10.1177/1359105302007004330


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